Tuesday, March 01, 2016

Homeward Bound!

So Abby gets to come home tomorrow.  We are so excited and know you are celebrating with us!  She will be on an IV antibiotic once a day.  They had to find one that was compatible with methotrexate, which she will be getting next week, and is effective in killing the enterococcus bacteria in her blood.  There's only one, and it is only given through the IV.  So a home care company will come with an IV pump and the antibiotic and show us how to do it.  If you look way back on this blog, we did this a lot back in the day.  Of course, we don't remember any of it it's been so long but we are hoping it comes back to us and that she doesn't unplug herself out of curiosity during the night like she did when she was 3.... kind of funny now but still gets my heart rate going.  She is bringing home a couple of respiratory devises to keep working on her lungs.  Her stomach issues are almost resolved.  Most importantly, she can keep up with her hydration without IV fluids.  Celestial Seasonings teas are our heroes right now, she is downing copious amounts of it since water tastes funny to her right now.  She will come back to the hospital for a few days starting next Tuesday for her, hopefully, last doses of chemo.   Then we get to rest for the weekend and start all the BMT workup tests the 14th.

On the BMT note, Anna and Lily were tested Friday for blood types and some viruses to help the doctor decide who might be a better match.  So.....drum roll please..... they are all exactly the same blood type (O Negative) and they have all had all the same 20 or so viruses, EXCEPT one.  Anna tested negative for the antibody and Lily tested positive.  Here's where it gets interesting! Abby tested negative last month but positive this month.  Hmmm.... it's a respiratory virus you get as a baby.  So, there thought is two possibilities.  A)She has the virus now since her immunity is so bad or B)she just has the antibodies from one of the blood transfusions.  They tested her further today (saliva, urine) to see if she really has the virus now or she's just borrowed someone else's antibodies.  Makes me a little weirded out to think of but it's the least of our concerns.

Things we are thankful for after 26 days of February spent with her in the hospital....
1. Children's Hospital factuality and staff
2. Sisters who are ready either way to donate, one if Abby has the virus, the other if she doesn't.
3. My folks heling out in person
4. All of you helping out from farther away.  Meals, cleaning, encouraging, supporting, listening....
5. Bath time
6. Abby is STILL smiling and shining God's light in all of this.
7. BBQ Pork sandwiches at the hospital
8. Panera when we get sick of hospital food

What are you thankful for as we head into Spring? We'd love to hear.  It's good for our souls!


Unknown said...

I read this yesterday while waiting in the hospital for some test results:
God is not deaf to your groaning prayers, the ones that come from the core of your being (Romans 8:26). He knows your deep longings, your desires for his kingdom to come, your yearnings to be "set free from bondage to corruption and obtain the freedom of the glory of the children of God" (8:21). He is coming to fulfill every righteous desire beyond your wildest imaginings.
But "the Son of Man is coming at an hour you do not expect" (Luke 12:40). His timing is often mysterious to us, but he knows what he's doing. By employing the element of surprise in glorious purposes, he humbles human pride, catches Satan off guard (12:39), and, wonderfully, heightens our joy when the answers come.
So keep praying and cultivate patient, long suffering faith. There will be a day when you find him unexpectedly at the well of your deepest thirst.

As I was reading your blog and you told of the perfect match of not one sister but two and the one little difference I couldn't help but thinking of the Father's joy as he watched you receive that news! I can imagine a beaming smile spread across his face as He watched your response to what He has put in place for Abby! He really is a good, good Father, isn't He!

Praying in faith with you!

Tiffany said...

Thanks Debi! As always, you are so encouraging when I need it!