Friday, April 29, 2016

Day +16 and looking toward leaving next week

I just talked to the Docs this morning and it looks like she is on schedule to get out of the hospital during the middle of next week!  ANC at 440 today and they expect it to double for a few more days. Once she is at 500 for 3 days in a row she can leave. So, Sat, Sun, Mon should be the 3 days and then we'll have our "independence day" the day that Tiffany and I get to give her all of her meds (it's a test to make sure we know what we are doing before we leave).

Once we pass our test, get trained on how to give all of these pills and when to give them, we'll get to take the 10 minute drive to the new apartment. Woot woot!

They will also be doing a chimerism test which will start to help them determine who's cells are coming back. Obviously we hope that these cells are Anna's and not Abby's. Chimaera is actually a greek mythological creature with 2 (or more) heads. In a medical sense, the condition is when you have 2 types of cells in your body. Oh those doctors are so clever in their naming! But we would rather have a successful takeover of Abby's cells by Anna's stem cells than a 2-headed creature let loose in Abby's bloodstream. This blood test will be an early indicator of that condition and then a day-28 bone marrow test will be the better test to see if Anna's cells have outcompeted Abby's.

Finally, Abby's IV pole is looking pretty good lately. Only 2 pumps on it now, and then basic IV fluids with an occasional antibiotic dose. She's been taking lots of oral meds, some of which make her very nauseous, but overall she has been having couple blocks of the day where she feels good enough to eat. Hopefully we'll figure out a way to kick the nausea soon and let her have full nights rest.

Hopefully it will stop snowing and be sunny by the time we leave. Gotta love the Colorado Spring!

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