Lots happening in 1 week
Originally uploaded by fireater.
So like I said, lots will be going on next Friday! Abby will have multiple doctors working on her for all her various aliments and treatments. Basically we'll check here in at 10am and then at 12 noon it all starts. First Dr. Blinman will take out her Broviac and replace it with a Med-o-port, just a different style access port for taking blood and administering chemo. It will be under the skin instead of a tube hanging out of her... I wonder if she'll miss her little "tube-e"? Next goes Dr. Smith who will do the spinal tap for the start of this long final phase. Finally Dr. King will go , who will do a corrective operation to fix that wandering eye. Actually he'll be doing surgery on both eyes to straighten her all out. Once she comes out of surgery with her new port and straightened eyes (and is awake enough to leave) we'll carry her over to Dr. Smith's office, CHOA, and she'll get an injection of Vincristine. And, if that all wasn't enough, when she gets home she'll start her new phases meds which will include 5 days of Decadron "the grumpy pill" and nightly 6-MP..... Whew that's a lot of stuff!!
So, as you might imagine, we're a bit anxious about all of this stuff but hopefully we'll warm up to it all by next Friday. It actually does make sense to do it all on the same day instead of going down multiple times and it is really nice that she can get her eye done and the Broviac at in one visit! Switching the Broviac to the Med-o-port will be the best for her in the long run, less chance of infection and no tube hanging out of her chest, but it also means that whenever she has to get blood or receive chemo she will have to get an "owee". We don't like the idea of her having to get a needle prick every time we go down to CHOA but also she has had so many blood infections that it just seems like the best thing to do at this time. If we wait until she gets another blood infection she would have to get 2 surgeries, one to take it out and then wait two days for the infection to clear until the Med-o-port could be "installed"... sometimes I feel like my daughter is a car or something, always "looking under the hood" and installing new devices... weird.
Anyway, lots will be going on next Friday. The recovery time is pretty quick for both the eye and the implant and the Decadron is only for 5 days each month... I'm sure I'll really be looking forward to those weeks huh? Who knows, maybe she won't be grumpy or ravenously hungry on such a short dose... I guess we'll find out soon!
This is so amazingly HUGE...just reading it puts everything in perspective and makes it become so real. To say that we are concerned, worried, faithful, hopeful, happy, and a host of other feelings would be an understatement. So, all we can say is that we love you and are so proud of that little girl and the courage she has at such a tender age to find victory in what would be for most of us an utter struggle near defeat. She is more than an inspiration! Love you all...especially our Abigail!
Nana and Papa
Keep us posted through out these next few days. Just as Robin said, to say we are concerned, worried, faithful, hopeful, happy and so much more would be an understatement. I just want you to know that you are ALL in my heart and my prayers.
Hey guys! We're hanging in there with you in heart, spirit & prayers! We will be covering you with prayer all through the week and especially on Friday. Give our little neice a big hug and kiss from Uncle Shad and Aunt MeMe. Give one to Anna for us too! We love you guys!
Megan & Shad
im praying for you guys so much and though reading this brings tears to my eyes simply because its hard to think of your baby doll going through all of this, please know with so much confidence that you are a part of my day and heart...i love you guys so much and trust that God will bring you comfort in the times needed...
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