Friday, November 20, 2015

Not gonna lie- Today was tough.

Today was a tough day for Abby.  I don't want to sugarcoat these update but I don't want to depress people either.  I guess all I can do is update: the good, the bad, and the ugly.

The Good-

  • She got to go for a walk to the gift shop without her IV pole with the family when she was feeling ok.  
  • She ate dinner and played Uno with Tiffany tonight.
  • We had lots of support from friends and family and are feeling very encouraged.
  • She is in good hands of the doctors and nurses.


The Bad-

  • She reacted to one of the chemo drugs last time (PEG) and therefore can't get that shot again... unfortunately (is there a bigger word than just unfortunately?) she has to get 6 shots for every 1 shot of the PEG that she would have gotten. 
  • This therapy had 2 PEG shots for each 30 day block... that means 12 shots in her legs
  • She sobbed in fear for a large block of time today and finally we got some anti anxiety medication for her so that she could get those shots.
  • There are a lot of fears of pain that are ruling her emotions, I think a lot of them are based on the subconscious fears from her last treatments... please pray against those fears.


The Ugly-

  • Sorry, I can't share much of that.  It would just get us all down.  In a time like this you can't really look more than 1 day in the future, it's too hard, too many "what ifs".  
    • So, let's just leave it at this: watching your kid go through this, and not be able to do much to be able to help, is one of the hardest things I've ever done... twice.
Positive note to end this post:  She might be able to come home tomorrow!  Oh please let her come home.  I honestly don't know how people get through this without faith... I'm having a hard enough time with it!  

Thanks for all of the practical help, prayers, cards, thoughts, and email notes.  We appreciate them all more than we could ever convey in a blog post.


3 comments:

Unknown said...

Tonight I was sitting in the Nihon Budokan for the 3rd Franklin Graham Celebration of Love event. The evening was filled with song after song of God's goodness and the message of salvation. I thought of you all throughout the whole thing. I even took a picture for you of the hundreds of people who went forward at the end to receive Jesus as their personal Savior. I knew it would bring you joy to know what God is doing here in Japan this weekend! (I'll email you the picture since I can't post it here) This song that was sung in Japanese and English is still running through my mind hours later:

Great is thy faithfulness
Great is thy faithfulness
Morning by morning new mercies I see
All I have needed they hand hath provided
Great is thy faithfulness, Lord unto me

Unknown said...

Father God,
Remove the anxiety & fear in Abby`s mind & spirit. Replace fear with the presence of Jesus`s love. Replace anxiety with peace. Fear & anxiety, we command you to LEAVE in Jesus name!! Perfect divine peace, loving protection to envelope Abby.

Give words to Mark & Tiffany to give them strength as they watch their daughter in pain. As parents they want desperately to take the pain for their daughter. As their hearts break with the reality they face, fill those breaks like water flows with your flowing presence. May they see you in every moment.
<3

Unknown said...

Father God,
Remove the anxiety & fear in Abby`s mind & spirit. Replace fear with the presence of Jesus`s love. Replace anxiety with peace. Fear & anxiety, we command you to LEAVE in Jesus name!! Perfect divine peace, loving protection to envelope Abby.

Give words to Mark & Tiffany to give them strength as they watch their daughter in pain. As parents they want desperately to take the pain for their daughter. As their hearts break with the reality they face, fill those breaks like water flows with your flowing presence. May they see you in every moment.
<3