Saturday, December 12, 2015


Day 10 in

Well, we are still here.  Tiffany, Vicky (tiffany's mom), and I have all been taking turns staying overnight and keeping Abby company.  One of us drives down in the late morning, hangs out for a bit, then the other one drives home before rush hour traffic.

I know this drill all too well and I also know about the record keeping for medical.  I just dug up one of my old spreadsheets to use as a template for expenses. This morning I entered our mileage since the start of this and we have already hit 3300 miles of commuting since her first appointment.

Overall Abby is doing good.  She's a real trooper and has a positive outlook on this whole hospital stay.  Still it isn't fun all of the time and we've had some tears together over various realities.  The reality of her hair coming out is probably the biggest one right now.  It brings the reality home when your hair starts falling out.  I'm sure the bald head thing will be a challenge for her more this time than last time.  Did you know that they make a bald Barbie with wigs and such?  Yep, Abby has one now.  I actually think she is excited to play Barbies with her sisters (for the first time in her life).

Tiffany's mom is going to come up and cut it a bit shorter today so that she won't have as much to loose as it come all out.

Thursday, December 10, 2015

70 mile commutes

Still in the hospital.  At least she is starting to decorate the room though.

The 70 mile oneway trip is getting a bit tiresome though.  Usually one of us goes down sometime in the late morning, hangs out, stays for any procedures (i.e. shots), and then the other person drives back home before rush hour.  We've been doing this for a week now, that's over 1000 miles this week.  It doesn't seem as long as it did the first couple of times but still I'd rather have Abby back at home.

Unfortunately her ANC is still low, actually lower now (down to 30 today).  We were hopeful that the ANC boost from the steroids last week would peak at 100 and we could leave before it dropped again but it didn't happen.  So, now we are planning for another week down in Denver.

Maybe she'll have a great immunity building night and wake up with an ANC of 100... but I'm not holding my breath right now.  Only time will tell.

So, more shots tomorrow and then again on Monday.  Wednesday is her bone marrow test and hopefully the results of that will be awesome.  We are praying and hoping that the chemo is working extra good (should be given her counts) and that the test results will show the cancer is gone (or at least under 1 in 10,000 cells).

Pray that she can come back home soon.  Obviously it would be so much nicer to do this all at home instead of as a commuting family.

Monday, December 07, 2015

Doing good but still here

Abby is still in the hospital. Basically waiting for her immunity to get strong enough so that they will let her leave. It has to be above 100 and right now it's only 50. It was 80 yesterday so hopefully it'll move up sooner than later.

For now we are trying to find ways to keep her for getting too bored or watching movies all day. She has a felting kit so that's been fun. She's making a felt sushi. They also brought in a star to paint today. 

We'll take some walks and just keep waiting it out. 

Have a good day.