Sunday, November 22, 2015
Not quite yet
Well, Abby isn't quite ready to go home. Her phosphate levels are too high without the help of IV fluids to keep them down. If her nausea gets better, she may be able to drink enough liquids to keep them flushing out of her body. Her uric acid levels are too high as well. She is too nauseous to eat anything and hasn't kept anything down yet today. So, all of those things together mean she needs to stay in the hospital a bit longer. We will see how the week unfolds. She has more chemotherapy tomorrow and Wednesday and Friday (all of which include those nasty shots in her legs). Hopefully we can find a good combo and/or plan for the anti-nausea medicines so that she can get more on top of it. Her port sight is getting less tender so that's good. Her spirits are low. She is trying to work through so many things right now. We had a wonderful visit from her previous oncologist, Dr. Smith, and his nurse Sara, that were as good for Mark and I as they were for Abby. As Sara sat and talked to Abby she emerged from her shell and for that we are very grateful. Sara is a very special lady. She saw Abby through the whole ordeal last time. She and I were pregnant together with our third babies. She has the rare gift of being able to gently assess what's going on, take charge of the situation, and stay on a heart level with you the whole time. She is very perceptive and has a ton of experience with cancer kids and a ton of experience with Abby. Dr. Smith (deemed "Dr. Sniff" by Abby back when she was 3) is wonderful too, we are so glad he is on the team to fight this with us. So, right now Abby is sleeping, with the help of some medicine. Mark and I went out to dinner last night while my wonderful mom stayed with Abby. So many lovely people on this road. We couldn't do this without each of you.