- She got to go for a walk to the gift shop without her IV pole with the family when she was feeling ok.
- She ate dinner and played Uno with Tiffany tonight.
- We had lots of support from friends and family and are feeling very encouraged.
- She is in good hands of the doctors and nurses.
- She reacted to one of the chemo drugs last time (PEG) and therefore can't get that shot again... unfortunately (is there a bigger word than just unfortunately?) she has to get 6 shots for every 1 shot of the PEG that she would have gotten.
- This therapy had 2 PEG shots for each 30 day block... that means 12 shots in her legs
- She sobbed in fear for a large block of time today and finally we got some anti anxiety medication for her so that she could get those shots.
- There are a lot of fears of pain that are ruling her emotions, I think a lot of them are based on the subconscious fears from her last treatments... please pray against those fears.
- Sorry, I can't share much of that. It would just get us all down. In a time like this you can't really look more than 1 day in the future, it's too hard, too many "what ifs".
- So, let's just leave it at this: watching your kid go through this, and not be able to do much to be able to help, is one of the hardest things I've ever done... twice.
Positive note to end this post: She might be able to come home tomorrow! Oh please let her come home. I honestly don't know how people get through this without faith... I'm having a hard enough time with it!
Thanks for all of the practical help, prayers, cards, thoughts, and email notes. We appreciate them all more than we could ever convey in a blog post.