Wednesday, January 05, 2005

The new "normal"

So we are back at home and after a good night sleep I woke up and realized the Abby still has Leukemia. Kinda weird huh? I bet you all feel that sort of surreal feeling too. It's going to be good, I know it is.

So, here is our new normal day.

  • Wake up, milk and meds, this consists of prednisone, and some Tamiflu for now.
  • Breakfast, and then wash out her mouth with a couple different washes and Nystatin to keep her from getting mouth sores or Thrush.
  • Lunch, a couple meds and an IV given anti biotic for this week only. Then the mouth wash/nystatin.
  • Dinner, Prednizone, Tamiflu, mouth wash and Nystatin.

We also have hand sanitizer EVERWHERE now and will be using it for us, her and guests. Other than the cleaning thing, I think things will be pretty normal. Anna will be rejoining our family today after staying the week with the Majeskis. (Thanks Mitch and Shelly!)

Here is our verse that we memorized today, claim it with us today if you would like.
Pslam 28:6-7
Praise be to the Lord for He has heard my cry for mercy. The Lord is my strenght and my shield. My heart trusts in Him and I am helped...


Anonymous said...

I just learned of your precious girl a few days ago, via the Friends of Allie message board. I will keep Abby and your family in my prayers. Ashley Hast

MommyShel2Qnx said...

You are loved! What a beautiful, perfect verse. You are in my thoughts and prayers.


Anonymous said...

Mark & Tiffany, God bless you and cloak you with wisdom and strength during Abigail's illness. The verse Pslam 28:6-7 is great because "The Lord is my strenght and my shield." is perfect for what we have to go through today. Praise the Lord for His mercy and love.

PS: my non-techno abilities led me to sign-in anonymous because I ended up with a 'blog' of my own when I tried to sign up as user. Ed.

Mark & Krista Majerus said...

Dear Abby,
We wanted to leave this message for you and your family to read so that you are reminded of the love that we have for you. For the past few days our thoughts have been continuously filled with you, your parents, and your sister. We continue to pray for you each day-- for God's healing, for God's peace, for God's strength.
Abby, we also want to tell you a little something about your parents. They are two of the greatest people we have ever known and God has used them tremedously in our lives. When we moved to Colorado we didn't know anyone. Your parents loved on us and blessed us in so many ways for the two years that we lived there. It is hard to describe all that they have done for us. You have amazing, God-loving parents. It was very hard for us to move away from them.
We also got to know you while we lived there and you were always such a bright light for us. We loved being around you and your sister. We miss seeing you smile & laugh, twirl, dance, & play. We are excited for the day when we will be able to see you and your family again. We only wish we were closer now-- but we will continue to send you our prayers and love.

May God bless you and your family in miraculous ways as you fight this battle. You are an amazing child of God and we love you!

Mark & Krista Majerus
(The Majeri)

Chaya Joelle said...

Sorry it took us so long to get a hold of you. I knew you had mom there and we were keeping posted through her, but it's not the same as talking to you. I just knew you would have a million calls/emails, etc. and wanted to see you get home with Abby before trying to get in touch with you. I called this morning and left you guys a message. But the jist of it is that Brian and I love you guys so much! We are praying for you and sharing the journey with everyone we know to ask them to join in prayer with our family as well. We wish we could be there with you guys right now, but it's good to know that God is good and that he is in control and he is taking care of you through this. What a powerful and truthful verse and we are claiming it with you today! If you need anything, please let us know. If you say the word, we will be there in a heartbeat. God is on the move and is doing great things. It is awesome to hear how you and Abby have changed the lives of doctors and nurses by just your love and faith. Thank you for being great teachers and leaders. We love you much. Give a BIG HUG to Abby for Uncle Brian and Auntie Chay and let her know how much we love her and are praying for her today. XOXO